Hi everyone, I'm just checking in to let people know I'm alive, just about.
I'm still suffering with long covid, and over the course of time my situation is gradually going downhill. I've been bedbound 24/7 since the start of this year (after trying to stand up for a minute).
Getting the doctors to take an interest is a struggle. I'm testing some beta blockers as I started getting adrenaline rushes that would send my heart rate up to 120bpm, which made it difficult to breath for me (I already have type 2 respiratory failure before covid).
I'm still on oxygen when I'm moving around the bed.
I'm hoping at some point I'll start recovering, as I'm approaching my 2 year anniversary in December.
I'm not sure I'll recover on my own, so I've been keeping my eye on the research going on. At the moment we're in mainly in the research phase on how covid attacks the body. There are some trials that are on going so hopefully we'll see some good results.
My situation is dire. But mentally I'm resilient because I was born disabled, so the mental impact of becoming disabled hasn't effected me as much as it's effected others.
So I just thought I'd keep the thread updated on my progress.
Try and avoid getting covid. It might seem like you shake it off and recover. But the more times you get covid it wears your immune system down and starts lingering in the body. I now realise the first time I got covid and appeared to get over it in 5 days, the itchy reaction to shampoo on my leg that at the time I thought was a seperate issue seems now to have come from that "harmless" first infection. The third infection is what give me long covid. I never fully recovered, mainly breathing oxygen, and heart rate problems.
Take care everyone!