Kitz ADSL Broadband Information
adsl spacer  
Support this site
Home Broadband ISPs Tech Routers Wiki Forum
 
     
   Compare ISP   Rate your ISP
   Glossary   Glossary
 
Please login or register.

Login with username, password and session length
Advanced search  

News:

Author Topic: Fybromyalgia  (Read 3086 times)

Black Sheep

  • Helpful
  • Addicted Kitizen
  • *
  • Posts: 5717
Fybromyalgia
« on: September 10, 2018, 08:23:40 PM »

Hey Kitz ...... a pictorial representation (from that friend of mine), highlighting the depths this thing can get to !! Not nice.  :(
Logged

kitz

  • Administrator
  • Senior Kitizen
  • *
  • Posts: 33881
  • Trinity: Most guys do.
    • http://www.kitz.co.uk
Re: Fybromyalgia
« Reply #1 on: September 10, 2018, 08:48:50 PM »

Cheers - Sparkler Burns is a new one on me.   I describe it as like electric shocks  :D

They also forgot the acute stabbing pain that will appear out of the blue and make you fall flat on your face & unable to get back up again until it subsides.
That is why I'm currently covered in bruises and have a deep gash and scrapes from where I hit something on the way down :'(
Logged
Please do not PM me with queries for broadband help as I may not be able to respond.
-----
How to get your router line stats :: ADSL Exchange Checker

Black Sheep

  • Helpful
  • Addicted Kitizen
  • *
  • Posts: 5717
Re: Fybromyalgia
« Reply #2 on: September 10, 2018, 08:55:45 PM »

appear out of the blue and make you fall flat on your face & unable to get back up again until it subsides.
That is why I'm currently covered in bruises and have a deep gash and scrapes from where I hit something on the way down :'(

You sure that's not vinoalgia ??  ;D ;D

In all seriousness, as mooted many times before ..... it sounds damned horrendous. I shall be very selfish and hope I never contract this. 
Logged

kitz

  • Administrator
  • Senior Kitizen
  • *
  • Posts: 33881
  • Trinity: Most guys do.
    • http://www.kitz.co.uk
Re: Fybromyalgia
« Reply #3 on: September 10, 2018, 09:09:02 PM »

>> You sure that's not vinoalgia ??

haha  I wish!   :drunk:

tbh..  I've said several times to friends or people that I'm with, that I am fearful that bystanders will automatically think I'm drunk if I stumble and fall.
It doesn't help if you're having a Fibro Fog day and your brain forgets most of the words you wish to communicate.   I'm sure your friend will be able to identify with this.

It's one of the things that deters me going out sometimes and why I will use a shopping trolley even if I only want a pint of milk. 
Hospital gave me crutches, which are frickin useless as my hands & arms are often too sore, but I've recently been given a stick which has a moulded palm shape handle which is much better.
Logged
Please do not PM me with queries for broadband help as I may not be able to respond.
-----
How to get your router line stats :: ADSL Exchange Checker

burakkucat

  • Respected
  • Senior Kitizen
  • *
  • Posts: 38300
  • Over the Rainbow Bridge
    • The ELRepo Project
Re: Fybromyalgia
« Reply #4 on: September 10, 2018, 10:15:03 PM »

Paresthesia and neuropathy I know well.  :'(
Logged
:cat:  100% Linux and, previously, Unix. Co-founder of the ELRepo Project.

Please consider making a donation to support the running of this site.

renluop

  • Kitizen
  • ****
  • Posts: 3326
Re: Fybromyalgia
« Reply #5 on: September 10, 2018, 11:56:12 PM »

My daughter, 50 with kids 19, 15 and 10 has been diagnosed, finds life very hard with it. it seems also associated in her case with gut issues. Eldest has ME/CFS.

Le Fanu wires Fibromyalgia in today's Telegraph. Apparently some argue it's psychosomatic, but it seems some get relief from medicinal cannabis, which, Le Fanu suggests, tends to disprove the theory.
Logged

kitz

  • Administrator
  • Senior Kitizen
  • *
  • Posts: 33881
  • Trinity: Most guys do.
    • http://www.kitz.co.uk
Re: Fybromyalgia
« Reply #6 on: September 11, 2018, 01:16:30 AM »

Quote
finds life very hard with it

It's certainly life changing :(   Diagnosis is difficult and can take a long time.  I also have the added complications of arthritis, spondylolysis and ulnar palsy so those took priority for a while, but when I started having difficulty with vocabulary and remembering certain things, my daughter grew increasingly concerned.   I had tests which ruled out dementia & Alzheimer's, but it was so frustrating that some days I just couldn't read anything or remember which words to use.  I quite often say its as if someone has cut my vocabulary in half.   It's even more annoying to know that in the past I could just soak up knowledge and remember numbers no problem.   

It was the Neurosurgeon who when looking at MRI results for spondylolysis said he suspected I may have also FM, but it was outside their specialist area and I'd have to be referred to Muscular Skeletal for diagnosis.   Up until then I'd never really heard of FM.  When I saw the MSK consultant, the diagnosis was immediately confirmed.
The really hard part is getting medication right.  Some of the pain killers have caused havoc with my digestive system... and I didn't do too well on Gabapentin - I think I was off my head a lot of the time - but they swapped that to Pregabalin which is suiting me better and at least gives me some respite from RLS if nothing else. 

Quote
but it seems some get relief from medicinal cannabis,

It is something I have only just started to research.  All I'm really aware of from others on the FM groups is the H&B version isn't strong enough for MS & FM as its too dilute.  :/
Logged
Please do not PM me with queries for broadband help as I may not be able to respond.
-----
How to get your router line stats :: ADSL Exchange Checker

Weaver

  • Senior Kitizen
  • ******
  • Posts: 11459
  • Retd s/w dev; A&A; 4x7km ADSL2 lines; Firebrick
Re: Fybromyalgia
« Reply #7 on: November 30, 2022, 11:30:18 AM »

I’m very pleased that after about eight years they got my pain under control with fentanyl and morphine and various other drugs whose names I can’t remember, all together. I’ll have to ask Janet about the vital other drugs which I forgot; that’s half the problem, my brain is wiped out and my short term memory is quite worrying and a big problem. I’m very fortunate. Janet looks after me and she’s far more ill than I am.
Logged

Alex Atkin UK

  • Addicted Kitizen
  • *****
  • Posts: 5261
    • Thinkbroadband Quality Monitors
Re: Fybromyalgia
« Reply #8 on: November 30, 2022, 03:48:48 PM »

I consider myself fortunate I do not have it as bad as my mum, yet.  But those days I get up and suddenly everything hurts really suck, though its the inability to stay awake that really ruined everything, no way to hold a job like that.

But I seem to have arthritis (not diagnosed but seems the same as my mum had before it was detectable), IBS which sets off severe back ache from trapped wind and if its feeling really fancy some sciatica.  Got 3 hours sleep last night.

Still, I normally DON'T get what my mum does, which is if anyone touches her its agony.  I do get sensitivity to touch (like that area feels burnt) but it moves around and isn't constant.
« Last Edit: November 30, 2022, 03:55:26 PM by Alex Atkin UK »
Logged
Broadband: Zen Full Fibre 900 + Three 5G Routers: pfSense (Intel N100) + Huawei CPE Pro 2 H122-373 WiFi: Zyxel NWA210AX
Switches: Netgear MS510TXUP, Netgear MS510TXPP, Netgear GS110EMX My Broadband History & Ping Monitors