Could I be identified?
When I was diagnosed I was 1 of 50 in the world with it, and 3 or 4 in the UK.
Do you think they could find out who I am ?
I have no objection to the idea, but I would want to be able to view and delete what is on my records, it could
be just wrong or it could be I don't want others to know that information.
I don't see why the data from a GP surgery with its post code and not that of the individual would still be good enough for research, why do they need NHS number?
I was in a NHS clinic recently and the Nurses on the station were changing one of their system passwords and asking the other how to do it, they told me the old and new password but only because I was close to the nurses station.
I think I could of got them sacked if I had reported it.
So if you think its secure you are dreaming.